When little Jaxon Buell was born with Microhydranencephaly, a rare condition that left him without most of his skull, his parents feared for the worst.
Knowing that this condition regularly claims the lives of thousands of babies in the U.S. every year, Brandon and Brittany Buell were told to prepare for the worst.
And they did. They prepared for stillbirth, for neonatal death, for permanent disability and lifelong care. What they didn’t prepare for was Jaxon’s incredible bravery and strength of will.
Posted by Jaxon Strong on Wednesday, September 24, 2014
One year from his birth--and one year longer than the doctors expected him to live--Jaxon is thriving. In the care of his doting parents, Jaxon lives a full, happy and precious life.
Posted by Jaxon Strong on Thursday, January 22, 2015
To celebrate his son’s birthday, and to reflect on the hardships they have overcome, Jaxon’s father, Brandon, has penned a beautiful heartfelt letter to his baby boy. In it, he writes:
For our family, it’s also normal to feed our baby by feeding tube. It’s normal to embrace him as he goes through his startle seizures multiple times a day. It’s normal to look at Jaxon and see a perfectly created boy and other babies truly do look weird and oversized to us.
And, it’s normal to take Jaxon in public and always feel the looks, the stares, and the glances, usually from people that don’t even realize that they’re doing it. But, we do have to venture out into the world sometimes, to refill the pantry, for me to go to work, and, yes, even occasionally grab a bite to eat because we didn’t have time to cook or just didn’t want to because it’s Friday!
Posted by Jaxon Strong on Saturday, August 8, 2015
He also sums up his family's unique situation this way:
We have never expected everyone to understand our family, our fight, our choices, our son, and his journey, and we can’t care about that. Jaxon’s life is too precious, but his impact is endless.
No matter who you are or what you believe in, it’s clear that Jaxon’s tiny footprints will have a lasting impression on this world, and that he has already touched and inspired more lives in one year than most of us ever will in our lifetime.
To read the rest of his uplifting, emotional letter, visit AWW.com.au.
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